DIPG children / DIPG warrior of the week. We would like everyone to meet Londyn. She received her care package from Amazing Mia the other day. We love to see smiles on their faces. We have loved this family from the beginning. Janine fought every day to get treatment for Mia. Unconditional love is what we have gained from this diagnosis. The world looks completely different and we will never be able to not see what childhood cancer truly is. It’s unfair, unresearched, and unbreathable moments. The only thing we have found is the amazing and wonderful people who chose to bring joy. We need to help these DIPG children.

Did you know? Childhood cancers represent the leading cause of death in children over the age of 1. Those numbers only represent approximately 1%‒3% of all cancers diagnosed annually in the United States. There are several initiatives centered around childhood cancer care and research data. Through enhanced data sharing, we can improve our understanding of cancer biology to improve preventive measures, treatment, quality of life, and survivorship, as well as ensure that researchers learn from every child with cancer.

If you don’t already please choose to help, bring happiness, and love to everyone in this battle. We love you Mia forever. Janine you are amazing and I see why your daughter was so amazing.

We would like to assist other parents and children dealing with this terrible disease. Please use the donate page to submit a donation or our contact page to request a care package for a child. Let’s bring awareness and help these children and help comfort these families in need.

Today 5/17 is DIPG AWARENESS DAY. These children watch their friends thrive and do the things that they SHOULD be doing. I ask of nothing more than for you to just share the information about DIPG awareness. Did you know only 4 percent of all federal cancer research funding goes towards pediatric cancer? Why are children only getting 4 percent of funding?

DIPG is not genetic! It isn’t a disease that runs in families, nor is it something that can be tested in utero or at birth. It could happen to any child at any time. By the time you start to see symptoms, it’s often too late. It’s a monster and Mia, along with countless other children didn’t deserve to die so young before reaching the many milestones they deserve in life. DIPG can’t be cured with diet, or some magic mouthwash, or by changing your home cleaning products. It can’t be cured with supplements or eating salmon until it comes out of your ears. There are things that can help with symptoms like THC and CBD, but it isn’t a cure.

Our only wish in this life is that were able to live long enough to see this monster become a thing of the past. Let’s honor these children and spread awareness. They deserve it! We will miss our Mia forever and will hold you close until we see you again. We Love U MORE!!!!!!

For more information regarding DIPG, please visit our website. Or submit your information via our contact form, and our team will reach out to assist with your needs.

I read an article recently about what NOT to say to someone who is grieving. I thought I’d post (daily) the ones that hit home. I may or may not wholeheartedly agree with these statements. But they aren’t something I want to hear and could possibly justify a throat punch….

“God never gives us more than we can handle.

How do you know God never gives us more than we can handle?

Seriously. How do you know that? Did you read that in Scripture somewhere? Did God come down and tell you that?

Because from everything I know about God, two things are absolutely clear:

God does not “give” tragedy to people. God does not cause evil. A God who causes evil (for testing or because he needs another angel) is an evil God. I understand that there is a more nuanced philosophical discussion that could happen here. But at the root of it, I will always insist that God never be the cause of evil.

God allows people to find themselves in situations that are bigger than they can handle. That’s the nature of learning to trust God. Understand God’s loving care for us. It’s all bound up in the idea that when we are out of control, God is still sovereign. He is still working the waves. The darkness and death into something, not that we can control, but something that can be redeemed.

So, no, on all accounts. This statement misses the point and should be avoided, as well.” Hence, what NOT to say.

For more information about what we do, please visit the about us page.